All About Ellie

Ellie, who was born on 25th January 2005, is the child of Julie and Nigel Libby.

Julie and Nigel had a little boy called Thomas who sadly passed away when he was only fourteen months old. Thomas died of a terminal illness for which there is currently no name but it was a terminal illness believed to be linked with the genetics of both Julie and Nigel. The geneticist believed that if they had a baby girl it was more likely that she would not be similarly affected.

Four years after Thomas' death, Ellie was born. It quickly transpired that she too, had a similar terminal condition.

Ellie requires around-the-clock care and suffers from:

• Global developmental delay
• Laryngomalacia - Ellie has a tube/opening in her throat
• Feeding difficulties - Ellie is fed solely by tube
• Seizures
• Vision impairment

Ellie was given a very short life expectancy and was not expected to live beyond her first birthday...she is still with us.

We, the trustees, want to make Ellie's life have meaning and wish to provide Cornwall and Devon in particular, with something to be proud of and something that will stand as a permanent memorial to Ellie.